Fibromyalgia: An Environmental Scan

Table of Contents

APPENDIX B

ORGANIZATIONS AND ELECTRONIC REFERENCES

Official Organization Name
 CANADA
FM-CFS Canada, Compassion in Action
Canadian Pain Society
Canadian Pain Coalition
Chronic Pain
The National Headache Foundation
Invisible Disabilities Association of Canada
 UNITED STATES
National Fibromyalgia Association
American Fibromyalgia Syndrome Association
American Chronic Pain Association
American Pain Foundation
Southern Pain Society
National Pain Foundation
The Fibromyalgia Community
Reflex Sympathetic Dystrophy Syndrome Association (RSDSA)
American Academy of Physical Medicine and Rehabilitation
American Academy of Orofacial Pain
National Institute of Mental Health
AAPM – The American Academy of Pain Management
Welcome to The American Massage Therapy Association
The American Occupational Therapy Association, Inc.
American Academy of Pain Medicine
American Pain Society
The American Chiropractic Association
Lupus Foundation of America
Anxiety Disorders Association of America
American Lyme Disease Foundation
American Holistic Medical Association
American Academy of Physical Medicine and Rehabilitation (AAPM&R)
UNITED KINGDOM
Fibromyalgia Association UK
The British Pain Society
Pain Research Institute
Patient UK- Fibromyalgia
AUSTRALIA
Bridges & Pathways Institute Inc / Southern Chronic Illness Links Network
Chronic Pain Australia
EUROPE
The European Federation of IASP chapters (EFIC) Europe Against Pain
ENFA – European Network of Fibromyalgia Associations

Irish Chronic Pain Association

The European League Against Rheumatism

Fibromyalgia Support North Ireland

European Pain Network

European Federation of IASP Chapters

ORGANIZATIONS AND ASSOCIATIONS
National Fibromyalgia  Research Associations
National Chronic Fatigue Syndrome & Fibromyalgia Association
Advocates for Fibromyalgia Funding, Treatment, Education and Research
The Chronic Syndrome Support Association, Inc.
National Institutes of Health Pain Consortium
Chronic Pain Support Group
Chronic Pain Outreach
The National Association of Cognitive-Behavioral Therapists Online Headquarters
Patient Advocate Foundation
International Foundation for Functional Gastrointestinal Disorders
Trigeminal Neuralgia Association
Women’s Health Information from the National Women’s Health Resource Center
National Sleep Foundation – Information on Sleep Health and Safety
ME/CFS (Chronic Fatigue Syndrome) & Fibromyalgia Information
H.O.P.E. | Welcome to Helping Our Pain and Exhaustion, Inc.
Pain Organizations | How To Cope With Pain
National Fibromyalgia Partnership
TNA The Facial Pain Association
International Association for the Study of Pain | Pain Treatment Services
International MYOPAIN Society
Change.org – FIBROMYALGIA ASSOCIATION
The Physiotherapy Pain Association Online
The Chronic Syndrome Support Association, Inc.
Pain Clinic
National Foundation for the Treatment of Pain
MedlinePlus: Pain
Interstitial Cystitis Association – Home
International Pelvic Pain Society
National Institute of Neurological Disorders and Stroke (NINDS)
Brain & Spine Foundation – Face Pain
WABA – Worldwide Aquatic Bodywork Association
The TMJ Association
Structural Integration Hellerwork
Reflexology Association of America
Prescription Assistance Program
National Sleep Foundation
National Family Caregivers Association
International Foundation for Functional Gastrointestinal Disorders
Association For Applied Psychophysiology & Biofeedback
fibromyalgia lupus skin houses for at myalgia.org
Whittemore Peterson Institute for Neuro Immune Disease
The DANA Foundation
Arthritis, Musculoskeletal and Skin Diseases Home Page
The Fibromyalgia Research Foundation
The Chronic Syndrome Support Association, Inc.
National Chronic Fatigue Syndrome & Fibromyalgia
Fibromyalgia WellSpring Foundation Homepage
Fibromyalgia – muscular rheumatism or neurasthenia
INFORMATION SITES
Doctors Hangout
Juvenile Primary Fibromyalgia Syndrome: Teens and PreTeens
Fibromyalgia and Florence Nightingale | Women and Fibromyalgia
Society for Women’s Health Research: Autoimmunity: Fibromyalgia Syndrome
Know Fibro | Learn How to Help Manage Your Fibromyalgia Symptoms
Overview of FM
Men with Fibromyalgia
Management of fibromyalgia syndrome
Surviving Fibromyalgia: My 30+ Years Managing My Fibromyalgia
Fibromyalgia
Fibromyalgia – muscular rheumatism or neurasthenia
Irritable Bowel Syndrome (IBS) Resource Center – HealingWell.com
Information on Medication for Fibromyalgia, CMP, CFIDS and overlapping conditions
Exercise for treating fibromyalgia syndrome
Medical Discussion Paper – Fibromyalgia Syndrome
Fibro and Fatigue
Fibromyalgia Network
Fibromyalgia – Patient Education – neurology channel
University Of Western Ontario Interdisciplinary Pain Program
Focus on fibromyalgia
Welcome To Fibromyalgia Network News
Fibromyalgia
Fibromyalgia – MayoClinic.com
What is Fibromyalgia (FM)?
Welcome to FibroIreland
Bandolier: The oxford Pain Internet Site
Mayday Pain Project
Pain Links
Pain 101
Chronic Pelvic Pain — familydoctor.org
International Pelvic Pain Society
Pain.com – A World of Information on Pain
Patient Knowledge | Paineurope
Chronic Pain Association of Australia
National Professional Pain Organization
facepain.com: The Leading Pain Site on the Net
Israel Society for Fighting Pain – Chronic Pain, RSD & Pain Resources
iSTOP: IMS for Chronic Pain
Clinicians Exchange Forms Partnership With National Fibromyalgia Association
ME/CFS Australia (SA) Inc: New Fibromyalgia video
Medline Plus: Pain
Mayday Pain Project Home Page
Bandolier
Blue Ribbon Campaign for ME/CFS
Bath Centre For Pain Services
Irritable Bowel Syndrome (IBS) Resource Center – HealingWell.com
For Grace | Women In Pain
Fibromyalgia: Improving Treatment, Unraveling the Cause
ME/CFS Australia (SA) Inc: New Fibromyalgia video
ME/CFS Australia (SA) Inc: Legitimacy of fibromyalgia still a contentious point
Management of fibromyalgia syndrome
Know Fibro | Learn How to Help Manage Your Fibromyalgia Symptoms
Fibromyalgia – Introduction
Chronic Illness Care – Fibromyalgia
BLOGS
Health Journals / Diaries / Blogs for Fibromyalgia syndrome (FMS)
Help for fibromyalgia Blog
Fibromyalgia Syndrome – Can it Still be Made Well? | The Chiro Blog Site
Help for fibromyalgia Blog
National Fibromyalgia Association -Blogs, Pictures, and more
Prospering Over Fibromyalgia
The Fibromyalgia Research Blog
Michigan Pain Blog: A Multi-Disciplinary Approach To Treating Pain
UK Fibromyalgia: Absolutely everything you need to know about fibromyalgia